My Journey from Disability and Disaster — to Possibility and Empowerment
From writing sums in the dirt with her finger at a poor village school in South Sudan, Esther Simbi rises above disability to become a Social Worker and Disability and Human Rights advocate in Australia. Giving voice to the voiceless is her passion. She believes that disability is not inability, age is just a number, and ‘refugee’ is just a label.
From polio at age four, through nineteen years in refugee camps in Uganda, Esther’s stories of life in South Sudan and as a refugee will move, shock and inspire you Read More
In January I shovelled snow and my left leg became very weak. My knee buckled twice but I caught myself before I fell. I went to my doctor and he sent me right to physical therapy. In the first session I was on the treadmill for 10 minutes, on the bike for 5 and I did straight leg raises with weights around my ankles. I barely made it home, where I fell to the kitchen floor. My legs are even weaker now and they are always burning. Don’t polio survivors need exercise to make weak muscles stronger?
Question: The knee on my polio leg kept bending further backward over the years. I was told to get a brace but didn't want one until I absolutely had to have it. After a while my knee hurt so much I’ve finally got a brace. But my knee bends so far back now that the brace bites into my skin and is so painful I can't wear it. Even if I could wear the brace, it is so heavy I can't lift my leg. What can I do?
At just 14, Elizabeth Edmondson became the youngest Australian to claim an individual gold medal for swimming at either an Olympics or Paralympics Read More
A polio survivor is warning about the importance of vaccines, with life-threatening illnesses "only a flight away". Brian Robinson's life forever changed when he caught polio in 1949, at just 17 months old. Read More
I read that you don't recommend exercise for polio survivors who are getting weaker. But if I stop exercising and do nothing, won't I lose muscle tone, get flabby and become deconditioned and even weaker?
You're asking a good question. It's vital that polio survivors understand what the research really says about exercise for newly-weakened muscles and know the definitions of "muscle tone" and "deconditioned." Read More
After 35 years of searching, archaeologists from The Post-Polio Institute have unearthed the “Commandments“ for treating Post-Polio Sequelae (PPS) . . . Read More
Why do some polio survivors experience that their "good leg" is getting weaker even though they "didn't have polio" in that leg. Read More
An in depth and very detailed look at anaesthesia for Polio Survivors. As well as a checklist to discuss with your surgeon before surgery. Read More
Montreal public-health authorities are baffled and disturbed by a surge of cases of children who have become paralyzed by a viral polio-like illness in recent weeks, echoing similar increases in the United States. Read More