I contracted polio in 1947, aged 2 ½ years. I lived with my family of 6 in the village of Lorton in the Lake District of England. Apparently, the symptoms presented themselves one Sunday afternoon when we were out walking, and I suddenly fell to the ground without any warning. Attempts to get me to stand failed and after advice from our doctor, I was initially admitted to the hospital in Carlisle and after a few days was subsequently transferred to the infectious diseases’ hospital near Lake Windermere.Read more
I am 73 years of age and still remember like it was yesterday the day my mum and dad took me to The Adelaide Children’s Hospital.
Looking up at the counter, holding on with my left arm, standing on my right leg, telling them I was ok.
Only to be diagnosed later with Polio in my spine, right arm, and left leg. I was 4 and a half years old, yes, I was vaccinated and soon to go to school. The next few months were spent in there and I will always be grateful and thankful for the love and care of my parents and everything the nurses and staff of the Children’s Hospital did for me.Read more
Polio Awareness Month October - World Polio Day 24th October 2019Read more
My Journey from Disability and Disaster — to Possibility and Empowerment
From writing sums in the dirt with her finger at a poor village school in South Sudan, Esther Simbi rises above disability to become a Social Worker and Disability and Human Rights advocate in Australia. Giving voice to the voiceless is her passion. She believes that disability is not inability, age is just a number, and ‘refugee’ is just a label.
From polio at age four, through nineteen years in refugee camps in Uganda, Esther’s stories of life in South Sudan and as a refugee will move, shock and inspire youRead more
I am the youngest of six children and I am from the South Sudanese Kuku community. I speak the Kuku language and English. A few weeks after settling in my mother’s village Lomura, I contracted poliomyelitis. One morning in Lomura Village South Sudan, I woke up with a high fever and a body paralysed from neck to toe. I was not able to stand or sit up. My mother gave me a medicine made from local herbs, and she invented her own form of physiotherapy treatment where she massaged my body in cold water every morning.Read more
In January I shovelled snow and my left leg became very weak. My knee buckled twice but I caught myself before I fell. I went to my doctor and he sent me right to physical therapy. In the first session I was on the treadmill for 10 minutes, on the bike for 5 and I did straight leg raises with weights around my ankles. I barely made it home, where I fell to the kitchen floor. My legs are even weaker now and they are always burning. Don’t polio survivors need exercise to make weak muscles stronger?
Question: The knee on my polio leg kept bending further backward over the years. I was told to get a brace but didn't want one until I absolutely had to have it. After a while my knee hurt so much I’ve finally got a brace. But my knee bends so far back now that the brace bites into my skin and is so painful I can't wear it. Even if I could wear the brace, it is so heavy I can't lift my leg. What can I do?
In this edition
1. From the President
2. Bracing for Polio Survivors.
3. Exercise for Strengthening ?
4. Paralympian Elizabeth Edmondson
5. Elizabeth’s Medal Honour
6. Polio Survivor Story
7. Esther Simbi Book Details
8. Polio Health and Wellness Final Retreat.
Dr Quadros & Dr Sivam attended our recent AGM ,Dr Quadros delivered a presentation on activities in regard to Post Polio at Queen Elizabeth HospitalRead more
At just 14, Elizabeth Edmondson became the youngest Australian to claim an individual gold medal for swimming at either an Olympics or ParalympicsRead more