Polio SA Summer Newsletter 2022
In this edition:
Specific guidelines for exercise in those with Late Effects of Polio
Life Members Award - Polio SA
Graham Daish - My Polio Story
Peter Freckleton - Story The Senior Magazine
Post Polio Workshop 22nd November 2022 AAG Conference - Adelaide Convention Centre
2022 AAG Conference, Pre-Conference Workshop
Recognition at Last, people ageing with Post Polio Syndrome
Invitation for workshop participants
About the workshop
The Australian Association of Gerontology (AAG) is hosting a workshop on the experiences and needs of people ageing with Post Polio Syndrome (PPS). The workshop will be held on 22nd November 2022 from 9.30am-12.30pm, as part of the AAG 2022 conference in Adelaide, at the Adelaide Convention Centre
Presentations from experts will include Polio Survivors, Clinicians, Researchers and Aged Care Service
Providers. The workshop will ask:
• What are the unique experiences and needs of people ageing with PPS?
• What does it take to be an inclusive service or community for people living with PPS?
AAG workshops attract a multidisciplinary audience, and the AAG will develop a paper summarising the workshop, to raise awareness of the hidden experiences and needs of Polio Survivors. The workshop is being hosted by AAG in partnership with Post Polio Victoria and Celebrate Ageing Ltd.
We would encourage Polio survivors to attend these workshops and participate, ‘nothing about us without us’.
For registration assistance please contact:
• Shirley Glance OAM President Post Polio Victoria: 0411 660 860
Workshop: https://aag.eventsair.com/55th-aag-conference/polio
November 2022
Polio SA AGM World Polio Day 2022 - Photograph and updates
Polio SA AGM World Polio Day 24th October 2022
Thank you to all members who attended our recent AGM on World Polio Day Monday October 24th 2022.
Also a special thanks to our lifetime members who were presented with ther plaque from Minister Nat Cook MP. Volunteering for over 20 years to help our Organisation . Thankyou Ron Blackwell, Trevor Jessop, Charles Greeneklee and to Maria Harding and Maureen Kowalick .
Michael Jackson Clinical Health Educator Polio Australia attended for a Q & A Session which was very well received by all present.Thank you Michael.
Many Thanks to Judy, Marilyn, Kate from Rotary Holdfast Bay for helping serve afternoon tea your time and effort was greatly appreciated.
West Adelaide Football Club a special mention a great venue and food was delicious thank you
And all thanks to the committee in attendance and planning of AGM
Polio SA AGM Monday 24th October 2022 World Polio Day
Open to all financial members of Polio SA at 1PM on Monday 24th October 2022 West Adelaide Football Club 57 Milner Rd Richmond SA 5033.
Polio SA Spring Newsletter 2022
Welcome to the Spring edition of the Polio SA Newsletter.
In this edition:
AGM Details
News from Post Polio Victoria
Book Review
Members Story
NDIS Class Action
ABC Q & A 4th Augst 2022 Shirley Post Polio Victoria President Advocates for Polio Survivors
Thank you Shirley Glance Post Polio Victoria President for advocating for Polio Survivors at Q & A on ABC
Thank you Shirley Post Polio Victoria Inc. for being a voice for Polio Survivors and people with disability over 65 accessing the NDIS scheme to hear Shirley's question to the panel on ABC Q & A.
from point 44:30
End Of Financial Year - Have you considered making a tax deductible donation
We would really like to carry on providing support for South Australians living with the late effects of polio. By way of providing massage voucher, hydrotherapy and information and support.
Polio SA is a registered charity all donations over $2 are tax deductible
We would really like to carry on providing support for South Australians living with the late effects of polio.
By way of providing massage voucher, hydrotherapy and information and support.
Have you considered a tax-deductible donation to Polio SA
Rod Muller - My Polio Story
I contracted polio at the age of 6 in 1956 and was affected from my hips down to my feet. Thankfully I did not have to go through the rigours of an Iron lung or leg irons and after a few months and lots of physiotherapy, went back to school and got on with life and really never gave it another thought.
Back in the early 1980s my Mum said to me one day have you heard that they are discovering people from back in the 40’s and 50, s were being diagnosed with Post-Polio Syndrome my comment was well it looks like I dodged that bullet
Rod Muller - My Polio Story
I contracted polio at the age of 6 in 1956 and was affected from my hips down to my feet.
Thankfully I did not have to go through the rigours of an Iron lung or leg irons and after a few months and lots of physiotherapy, went back to school and got on with life and really never gave it another thought.
Back in the early 1980s my Mum said to me one day have you heard that they are discovering people from back in the 40’s and 50, s were being diagnosed with Post-Polio Syndrome my comment was well it looks like I dodged that bullet.
Turn the clock forward to 2019 and I had to go for a simple sinus operation at the Stirling hospital, on my nose and when I woke up next morning stepped out of bed to go to the loo before breakfast and found myself a bit legless and thought to myself whoa this is a bit different this has never happened before. Hope it is not a Hydrocephalus problem. Yes, I suffer with it. I went home and over a period of a few weeks it got a bit better but then it didn’t I was suffering from lots of funny stuff going on in the lower part of my body so harked back to what my Mum had said. So, I went to see my doctor sat down in her office and asked the question what do you know about Post-Polio Syndrome, reply I know some people who attend our clinic who had polio but personally I know very little about it.
So, the next step was go and talk to my mate John Willoughby who was the Neurology professor at Flinders Uni for many years and after a fairly long chat he said yes, I am pretty sure you have PPS.
I contacted the Polio Australia people in Adelaide and was given the name of Nigel Quadros who was the go-to person in Adelaide to have a proper check-up, down at the Queen Liz Hospital and sure enough on consulting him he said yes you have classic PPS and told me a bunch of things I should pursue. It involved some major changes the first one being the fact I was told to halve my duty cycle which entailed slowing down from running my life at 100 kilometres an hour to 50 KPH in pretty much all categories because as time passes, I will begin to suffer more and more from a number of related issues. The first one being an increase in my fatigue levels
The degrading of my muscles and nervous system that had been attacked by the polio virus things I pick up day to day will appear to get heavier as time progresses. Things to be aware of Karma Rub (a life saver) and Magnesium Muscle eze. I suffer bad cramps, numbness and tingling that can happen anytime mainly in my feet. An increase relating to aches and pains in random places in the lower part of my body. An increase in my stress levels across the board. I am certainly weaker than what I was 3 years ago have installed 3 electric cranes to aid in any heavy lifting and I split my firewood into smaller chunks with a hydraulic splitter and I rely on other people to help me more often.
I was told a number of things I could do to help myself get on top of some of the degradation and reduce my rate of decline was to :-
Eat well not junk food and consume a minimum of 100 grams of good quality protein every day
Have access to a heated hydrotherapy pool…. so, I built one.
Find a good massage person
Find a good Physio person
Don’t let yourself get cold
Buy a copy of the Post-Polio Paradox book https://www.dymocks.com.au/book/the-polio-paradox-by-richard-l-bruno-and-richard-l-bruno-9780446690690.
https://www.youtube.com/watch?v=fykVp0ryy3U&t=10s
Proper exercises relating to my afflicted areas but in a very measured way so as not to exacerbate the polio
Rest more when feeling tired i.e., pull up a chair and sit down for a bit and know when to call it a day.
Become aware of your spatial position at all times so if you have to grab hold of something or you need to bounce off a wall or just plain lean on something for a moment. Don’t let yourself get cold, Increase my sleep and relaxation time. Be very aware of anaesthetics carry your card
Thank you Rod for sharing your story
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